It’s 4:21 am and I’ve been up for two and a half hours.  Not out of the ordinary as I have to change his feeding tube every 4 hours and feed him a bottle every 3.  Tonight is a little different.  My heart is heavy as I have learned of a little boy who is also battling Neuroblastoma 4s.  He has had a much harder battle then my Bodi and I can’t imagine the heartache his family has endured.  They are being transferred to Cincinnati children’s from Columbus this week.  We will hopefully get a chance to meet next week when Bodi goes in for his 4th round.  Please add little Frankie to your prayers.

Bodi has had this past week off and we have taken full advantage.  He has been in great spirits and really enjoying every day.  His Great Aunt Donna came in town from Florida and Bodi was able to spend a lot of snuggle time with her!  It was great!!
If that wasn’t exciting enough, Bodi is really getting his appetite back!  We have been slowly working him up from half an ounce to 2 ounces every 3 hours. He stayed steady at 2 ounces for what seemed like forever but the past week and a half he has been eating 3 ounces.  I was so proud to announce that to his dietician last week!  Well now I can’t wait to tell her that he was taking 4 ounces and for the past 2 days he has been taking 5 ounces!!!!  For me that is huge because it means his stomach isn’t being squished by his liver!!!!!  Yay!!!!!!!!!!! Before bed tonight Bodi ate 6 ounces!!!! Such a big boy!

Another super exciting development is that Bodi slept through the night for the first time on Friday !!!!! He slept from 10:15-7!!!!!! Wahoooo!!!  He’s also been sleeping since 10 tonight, so I’m hoping this is a new trend!! Although I have to admit that I’ve been waiting for a reason to pick him up and snuggle.  His snuggles are the BEST!

Everyday we find a new thing that Bodi loves.  Yesterday it was the baby in the mirror.  He loves that baby and thinks he’s hilarious!  He hasn’t realized that baby is him yet, so shhhhh, don’t tell him!
Please continue to pray for Bodi as they are working.  He is such a happy baby!

****disclaimer****
it is late and I apologize for any and all misspellings and grammatical errors!!!!

Who’s that baby in the mirror

Bodi’s big bro turned 13!

Loving Aunt D!

Cool dude