Bodi’s labs came back. It is a no go for chemo. His white blood cell count is too low. We have rescheduled for Monday. Bodi pulled his NJ tube out again around 3:30 am Wednesday morning. The dietician decided that since he is gaining weight and doing so well that his tube can be pulled back to an NG. That means that the tube is now in his stomach instead of his small intestines. So no more feeding pump for Bodi!!! YAYAYAYAYYAYAYAYAY!! Now our routine is to offer him 5 oz of formula and whatever he doesn’t eat I put into a syringe and hook that up to his tube. The remaining liquid goes into his stomach. The hope is that his stomach adapts to having that much liquid in it and he starts to drink the full 5 oz. She said if he starts to do that by next week we can remove the tube all together!!!!! That would be amazing!
In the meantime, Bodi is trying his hardest to roll over.
I’ve had a few people asking how they can follow this blog. In the top left hand corner there should be a white box. Click on that and it should say “follow”. If you click that you should receive emails every time I publish a new post.
Also, We have seen several people’s #bodiSTRONG shirts are wearing off. We have contacted Booster and they will replace the shirt. All you have to do is take a picture. Go to http://www.booster.com and click on contact us. We apologize for this inconvenience.
Bodi is one amazing and beautiful baby…..he is such a fighter…
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